The Map of BMT in Brazil

A Public Access Panel to Hematopoietic Stem Cell Transplantation Data

Authors

  • Anderson João Simione Hospital Amaral Carvalho
  • Adriana Seber Hospital Samaritano Higienópolis and Ameo
  • Rosana Machado dos Santos ROW Consultant, systems analyst
  • Wiliam Odair Talarico ROW Consultant, systems analyst
  • Wagner Malerba ROW Consultant, systems analyst
  • Livia Caroline Barbosa Mariano Compt Hospital das Clínicas da Faculdade de Medicina da USP, São Paulo
  • Flavia Ferreira da Costa Hospital Paulistano, United Health Group
  • Renata Rose Loebel
  • Carla Gonçalves Dias Federal University of São Paulo
  • Andressa Villagra Associação da Medula Óssea do Estado de Sao Paulo - AMEO
  • Adriana Maria Duarte
  • Wagner Fernandes
  • Carmen Silvia Vieitas Vergueiro Associação da Medula Óssea do Estado de Sao Paulo - AMEO

DOI:

https://doi.org/10.46765/2675-374X.2021v2n2p101

Keywords:

Allogeneic transplants, Data Collection, Disease-Free Survival, Hematopoietic Stem Cell Transplantation, Information Technology, Patient Access to Records, Registry, Survival Rate

Abstract

Brazil has a vast Hematopoietic Stem Cell Transplantation (HSCT) program with 126 teams and 86 Centers recognized by the Ministry of Health. Outcomes of these transplants are unknown. The objective of this work is to create a public database to help the public and health care professionals to find information on allogenic HSCT performed in Brazil. Methods: The team chose indicators, outcomes, and developed tools to accept secure data input using e-DBtC, Access, RedCap and excel spreadsheet. All data was inserted into the Virtual Analytics platform after careful validation and then presented as tables and graphics in separate portals for healthcare professionals and general public. Results: 29 HSCT centers participating in the project sent data on all consecutive allogeneic transplants performed between August 2019-2020. We gathered data from 943 transplants, with results arranged in graphs and tables, with the possibility of using various filters, so users can customize their search. In conclusion, more than 60% of all allogenic transplants performed in the country are now included in the Map of BMT, in an easy and accessible way to be searched. We hope to continue this initiative and extend it to other services, emphasizing great accomplishment of the Brazilian transplant community.

Author Biography

Anderson João Simione, Hospital Amaral Carvalho

Main IT and Data Manager Consultant within the Ameo – Pronon Project

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Published

07/17/2021

How to Cite

Simione, A. J., Seber, A., dos Santos, R. M., Talarico, W. O., Malerba, W., Compt, L. C. B. M., Costa, F. F. da, Loebel, R. R., Dias, C. G., Villagra, A., Duarte, A. M., Fernandes, W., & Vergueiro, C. S. V. (2021). The Map of BMT in Brazil: A Public Access Panel to Hematopoietic Stem Cell Transplantation Data. JOURNAL OF BONE MARROW TRANSPLANTATION AND CELLULAR THERAPY, 2(2), p101. https://doi.org/10.46765/2675-374X.2021v2n2p101

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